Low Vision and Blindness Accessibility in Hospitals

Holly, our lead low vision technician, and also a patient with Stargardt Disease, was invited along with another individual with low vision to evaluate low vision and blindness accessibility in our new local hospital.  See her comments below.

Holly and another individual with low vision in our local hospital

“I was invited to join a patient for a walk-through of IU Hospital in Bloomington. The purpose of this walk-through was to help answer questions and provide insight regarding some of the struggles a person who is partially-sighted might experience in an unfamiliar environment. Hospitals, along with other large buildings, can induce a lot of anxiety for many reasons, and having low vision is one that is easily overlooked. I love when people ask me questions about my low vision because it’s an opportunity for others to gain understanding about the obstacles that come with the territory. This sweet patient was so helpful and gave a first-hand look at what she experiences in her day-to-day life. Big thanks to IU Hospital for inviting me to share my insight!”

Helping Patients Read Music

This sweet patient (see photo) brought her dulcimer, music stand, clip-on lamp, and sheet music so that we could accurately recreate her set-up. She has macular degeneration and sees 20/150 with her dominant right eye and 20/50 with her left eye with no basic glasses correction being necessary. Due to a “binocular rivalry” she actually sees better with her right eye occluded or fogged. She needs to see her strings at 14″ and her music at 22″ to 24″.  Continue below for more on how we reached her low vision goal of seeing her instrument and music at the same time!

Dr. Long's low vision patient using special telescopic glasses to play the dulcimer
Macular Degeneration Patient using Special Telescopic Glasses to Play the Dulcimer

1. She was using enlarged music, or in her case “tabs” for the dulcimer, which she was writing out by hand in bold large print.

2. Even with her handwritten tabs and a +2.00 spherical glasses prescription (19.5″ focal length) she was not seeing adequately.

3. As seen in the photo, our solution was a pair of wide-angle bioptic telescopic glasses, left eye only, with a +2.75 spherical carrier (14″ focal length) and a +4.75 spherical telescope eyepiece (24″ focal length) and no angle of inclination (i.e., no upwards tilt).

4. “This is going to work! I can see at least three bars wide at a time!” We ordered a plano lens for the right eye and will supply a lens-clip that she can use as needed to occlude her right eye in case she is unable to suppress it.

Thank you and please share our information with your patients or loved ones with vision loss. While we see most of our patients by referral, all calls are welcome to see if we can help. Call 1-877-577-2040 and speak with me or our lead low vision technician, Holly.

Dr. Long Sees Patients with Traumatic Brain Injury (TBI)

prism glasses
Sectoral Prism Glasses to help with Visual Field Loss from Stroke and Traumatic Brain Injury (TBI)

 

  • I have accidentally become a neuro-optometrist.  Patients with TBI and other neurological deficits often have low vision…so I see them regularly.
  • Beyond the usual functional vision goals due to decreased visual acuity, these patients need help with various vision and other related symptoms.
  • TBI symptoms can include blurred vision, headaches, photophobia, reading difficulties, eyestrain, diplopia, eye movement disorders, visual field defects, color vision changes, impaired contrast sensitivity, perceptual difficulties, and vestibular dysfunctions such as visual motion sensitivity (VMS).

 

  • My Top 5 TBI Treatments:
    • Filters, Light Control
    • Prism, for Alignment/Binocularity, as well as Sectoral, Yoked, and Base-In
    • Increased Plus Power for Near
    • Selective Occlusion
    • Vision and Occupational Therapy Referral

LEARN MORE about how Dr. Long helps these patients

Better Low Vision Newsletter, Improving Low Vision Care

I’ve been serving the low vision needs of partially-sighted and legally blind patients for over twenty-five years. I have established many wonderful relationships with fellow vision practitioners, neurologists, therapists, counselors, and other professionals throughout my career.
Regardless of my experience to date, I believe that there is always an opportunity to make a greater difference. Would you be so kind as to answer a few questions about my monthly low vision newsletter, as well as our low vision services?
Thank you,
Dr. Jarrod Long
midwest low vision staff
Holly, Dr. Jarrod Long, and Casey

“Eigenzeit.” Staying in the Low Vision Care ‘Zone.’

We schedule low vision patients for 60 minutes at our main office and 75 minutes at satellite offices (I usually have no help from a low vision technician when I travel).  This seems to work MOST of the time.

Here is a time-related concept, “Eigenzeit,” and my experience applying it to low vision examinations.  The link will take you to this month’s edition of my low vision care newsletter.  Feel free to subscribe to our newsletter and/or browse through archived editions.  Thank you!

 

a five-star google review for dr. long and midwest low vision

Are you a Doctor Visiting our Site?

Who should you refer for advanced low vision care and is it your responsibility to do so?  Are you a “Five-Percenter?”  I promise to explain, but first consider, really consider, this common question I’ve been asked over the past 25 years:

 

“Why didn’t one of my other eye doctors

tell me about you (sooner)?”  – Patient

To be fair, maybe you didn’t realize that a referral for low vision care was appropriate, or maybe you didn’t know it was your responsibility.  Well today, I offer you some guidance on both counts.

Before I help explain “who” to refer for low vision care, I believe it’s important to know “why” it should be YOU referring YOUR patient.  And…I’ve actually just given you the answer.  She is YOUR patient and no one knows her better than you do!  She is relying on YOU to help her see what she wants, and needs to see, in order to function in this world.

 

“Secondary and Tertiary Care Ophthalmologists

are not Referrers.”  – Dr. Long

By definition, they are almost always being Referred To.  They provide a specialty service for YOUR patient.  While many of them recognize the need, and do refer regularly for low vision care, they are not gatekeepers.  I believe it is the primary eye care doctor’s responsibility to refer for low vision care.

Now, with the “why you?” question answered, on to Who to Refer for Advanced Low Vision Care:

Put quite simply, any individual with an unmet functional vision complaint.  Complaints are commonly related to reading, driving, working, watching television, doing handwork, using the computer, improving mobility, and enjoying various hobbies.  See if any of these examples of what to listen for sound familiar to you:

 

20/30 – 20/50  “I can read but it’s a strain and I never wore those strong glasses you prescribed last time.”  “The crawler on the TV is too small to read and goes by too fast.”  “Driving is OK as long as I stay local…I can’t read signs as far off as I’d like.”

20/60 – 20/160  “I can only read in natural sunlight and on certain days…usually just large print.”  “My daughter has to take care of my check register and read my mail.”  “I can only make out details on the TV when I walk up to it.”  “Dr. Retina said I probably shouldn’t be driving, but that he wouldn’t turn me in.  What do you think?”  “My job has become very difficult, especially certain programs on the computer that I can’t use the built-in magnifier with.”  “I’m afraid people think I’m rude because I don’t recognize them when I’m out.”

20/200 – 20/400  “I quit driving after a scare, but I would at least like to be able to read my own mail and see my iPad.”  “The text size on my phone is maxed-out and it’s still tough to read, and forget about seeing the pictures!”  “Mostly, I listen to the TV.”

20/500 +  “I’m looking for anything that’s available.  Do you know anyone that might have something that could help me see?”

Visual field loss (e.g., retinitis pigmentosa, hemianopsia) and Traumatic Brain Injury symptoms  “I feel anxious at the grocery store.”  “I’m very sensitive to certain lighting conditions.”  “Can I drive?!”  “Reading and computer work are real chores! ”  “I bump into people and they think I’m just rude or clumsy.”  “Sometimes I see double.”

 

Please don’t wait to refer until prompted by the patient at the “20/500+” level of vision.  If you’re just not sure, there’s certainly no shame in referring for what turns-out-to-be simply a good trial frame refraction.  And remember, she is YOUR patient.  I’m sending her back to you for her “regular” glasses and/or routine medical eye care.  I’ll only see her again when you tell me her low vision needs have changed.

Whether at my main office in Bloomington, Indiana, or at a satellite location, I am practicing as a specialist.  Your patient is YOUR patient…just the way it should be.  Now, if nothing else, simply make sure they know low vision care exists.

By the way, when I see a patient you have referred, I often tell them:

“Your Doctor is a ‘Five-Percenter’ (meaning you are part of the minority of primary care eye doctors

who refer for low vision care) and you should be grateful for such a thoughtful doctor!”

Thank you and please share our information, or share a well-qualified low vision provider’s information in your area, with your patients or loved ones with vision loss.  While we see most of our patients by referral, all calls are welcome to see if we can help.  Call 1-877-577-2040 and speak directly with me or our low vision technician, Holly.

Dr. Jarrod Long

Is there such a thing as a “typical” day in low vision care?

Is there such a thing as a typical day of low vision care?

When caring for the functional vision wants and needs of patients who are partially-sighted and legally blind, it takes knowledge, expertise, and experience. Simply having a technician hand a patient different magnifiers, filters, and the like just doesn’t cut it in my opinion.

Come with me in the video and visit with a couple of patients who are thrilled as they pick up the glasses we chose together in order to help them see and function better!

The first young man has a very limited field of vision (traumatic brain injury, TBI) and he particularly wanted help in seeing downward for mobility purposes. The second patient needed to see details at a distance more clearly secondary to having 20/100 vision from macular degeneration.

Thanks for reading and watching.  Give us a call if you have any questions or would like to schedule a low vision evaluation.